The Cayenne Wellness Center and Children's Foundation, in partnership with the Global Alliance of Sickle Cell Disease Organizations (GASCDO), is organizing a 24-hour global virtual marathon to commemorate World Sickle Cell Day 2024. Scheduled for June 19, 2025, this event is designed to unite individuals worldwide to enhance awareness, education, and support for those impacted by sickle cell disease and trait. The initiative underscores the critical need for global collaboration in addressing a health condition that affects millions, particularly in regions with limited resources and healthcare infrastructure.
Under the theme "Global Action, Local Impact: Empowering Communities for Effective Self-Advocacy," the marathon will feature a diverse array of activities. These include educational sessions led by healthcare professionals, personal stories from individuals living with sickle cell disease and their caregivers, and a talent showcase that highlights the community's creativity and resilience. Dr. Carolyn Rowley, Executive Director of the Cayenne Wellness Center, emphasized the event's significance in showcasing the strength and diversity of the sickle cell community. "Our World Sickle Cell Day marathon is an opportunity to raise global awareness about sickle cell disease and trait while providing education and community support for individuals and families," she stated. This approach aligns with broader public health goals to reduce stigma and improve care outcomes through informed advocacy.
Biba Tinga, Interim CEO of GASCDO, expressed enthusiasm for the event's potential to inspire and educate participants. "The 24-hour Sickle Cell-A-Thon is a beautiful opportunity to learn from and be inspired by warriors and caregivers from around the world," Tinga remarked. The event highlights the importance of global solidarity and local action in tackling the challenges faced by the sickle cell community. By offering a platform for education, advocacy, and celebration, the marathon aims to empower individuals and families affected by sickle cell disease, fostering a sense of belonging and hope. For more information on sickle cell disease resources, visit https://www.cayennewellness.org. The collaboration between these organizations, as detailed at https://www.gascdo.org, exemplifies how virtual events can bridge geographical gaps to mobilize support and drive meaningful change in health advocacy.
